Click here for an update http://www.isth.org/default/index.cfm/ssc1/2011-ssc-subcommittee-minutes/2011-von-willebrand-factor-minutes/

Dear patients, clinicans, specialists, scientists and technologists with interest/ experience in PT-VWD:  a forum has just been created on the site to act as a venue to exchange experiences and discuss all matter related to this bleeding disorder. Please register and offer your support by sharing yourknowledge and experience with PT-VWD

(1) Laurentian University- St Lawrence College Collaborative Program, Kingston, Ontario, Canada; (2) Hemocentro UNICAMP, State University of Campinas,Brazil; (3) Pathology and Molecular Medicine, Queen’s university, Kingston, Ontario, Canada; (4) Hospital de Pediatría Prof. Dr. Juan P. Garrahan, Servicio de Hematología/Oncología, Argentina; (5) Service and Central Laboratory of Hematology, Centre Hospitalier Universitaire, Vaudois and University of Lausanne, Lausanne, Switzerland; (6) Department of Hematology and Coagulation, Sahlgrenska University Hospital, Sweden; (7) Department of Haematology, The Birmingham Children’s Hospital, Birmingham, UK; (8) Department of Haematology, Institute of Clinical Pathology and Medical Research (ICPMR), Westmead Hospital, New South Wales, Australia; (9) Department of Anatomy and Cell Biology, Queen’s University, Kingston, Ontario, Canada

http://www.schattauer.de/de/magazine/uebersicht/zeitschriften-a-z/thrombosis-and-haemostasis/contents/preprint-online.html

The final results from a three years project searching for the rare bleeding disorder PT-VWD in addition to Updates on the PT-VWD registry  were presented at the ISTH-56th SSC meeting in Cairo on May 24th 2010. The project is now finalized. The registry and search for the disease will continue. Publication is underway. 

The PT-VWD registry and results from a worldwide survey will be discussed at the Von Willebrand Factor  SSC- bussiness session on Sunday July 12th 09  at 9:30- 12:00 , room 109 AB, Boston Convention & Exhibition Center, Boston, MA. This occurs as a part of the XXII Congress and the 55th Meeting of the Scientific and Standardization Committee of the International Society on Thrombosis and Haemostasis.

Progress and update from the Canadian PT-VWD project will be discussed in the von Willebrand Disease oral Session at  ISTH July 2009. http://www.isth2009.com

Title:  CANADIAN PLATELET-TYPE VON WILLEBRAND DISEASE (PT-VWD) PROJECT: PROGRESS AND UPDATE

Data from the Canadian PT-VWD project was presented in the ISTH-SSC meeting on VWD on July 3-4 as a part of Updates on VWD registries. Click here to see minutes from the meeting

Preleminary data from the Canadian PT-VWD project is presented in the WFH congress Istanbul 1-6 2008

For information click here

Through the ISTH EQATH, these participants have distributed information about the participation in the Canadian PT-VWD project:

QMP-LS (Quality Mangament Program - Labaoratory Service) distributes an announcement regarding a project to investigate the occurrence of platelet type von Willebrand Disease (PT-VWD) and differential identification from the closely similar, type 2B VWD to laboratories performing von Willebrand investigations in Ontario, Canada