PT-VWD updates reported to ISTH 2011: SSC-VWF
Aug 16 2011 Click here for an update http://www.isth.org/default/index.cfm/ssc1/2011-ssc-subcommittee-minutes/2011-von-willebrand-factor-minutes/
New to the site: PT-VWD Forum
April 8th 2011 Dear patients, clinicans, specialists, scientists and technologists with interest/ experience in PT-VWD: a forum has just been created on the site to act as a venue to exchange experiences and discuss all matter related to this bleeding disorder. Please register and offer your support by sharing yourknowledge and experience with PT-VWD
PT-VWD Project Full Results Now Published
Feb 9th 2011 PT-VWD project detailed results are now online: Thrombosis and Hameostasis prepublished February 08, 2011 Frequency of Platelet type versus Type 2B von Willebrand Disease: An international registry-based study. A. Hamilton (1), M. Ozelo (2), J. Leggo (3), C. Notley (3), H. Brown (3), J. P. Frontroth (4), A. Angelillo-Scherrer (5), F. Baghaei (6), M. S. [...]
Final Data from the PT-VWD Project at ISTH-SSC Cairo May 2010
June 10th 2010 The final results from a three years project searching for the rare bleeding disorder PT-VWD in addition to Updates on the PT-VWD registry were presented at the ISTH-56th SSC meeting in Cairo on May 24th 2010. The project is now finalized. The registry and search for the disease will continue. Publication is underway.
PT-VWD Registry and Worldwide Survey to be Discussed at the ISTH SSC- VWF Meeting
July 10th 09 The PT-VWD registry and results from a worldwide survey will be discussed at the Von Willebrand Factor SSC- bussiness session on Sunday July 12th 09 at 9:30- 12:00 , room 109 AB, Boston Convention & Exhibition Center, Boston, MA. This occurs as a part of the XXII Congress and the 55th Meeting of the Scientific and Standardization Committee [...]
Canadian PT-VWD project Update at ISTH July 2009
April 30th 2009 Progress and update from the Canadian PT-VWD project will be discussed in the von Willebrand Disease oral Session at ISTH July 2009. http://www.isth2009.com Title: CANADIAN PLATELET-TYPE VON WILLEBRAND DISEASE (PT-VWD) PROJECT: PROGRESS AND UPDATE Programme Number: OC-WE-134 Session Title: von Willebrand Disease Session Date and Time: Wednesday July 15 – 4:00PM – [...]
Results from PT-VWD Project Reported to ISTH-SSC on VWF, Vienna July 2008
October 26 2008 Data from the Canadian PT-VWD project was presented in the ISTH-SSC meeting on VWD on July 3-4 as a part of Updates on VWD registries. Click here to see minutes from the meeting
Preleminary Data from the Canadian PT-VWD project Presented in World Federation of Hemophilia Congress-Istanbul June 1-6 2008
May 30 2008 Preleminary data from the Canadian PT-VWD project is presented in the WFH congress Istanbul 1-6 2008 For information click here
ISTH EQATH Program Distributes Information about the Canadian PT-VWD Project
April 16 2008 Through the ISTH EQATH, these participants have distributed information about the participation in the Canadian PT-VWD project: RCPA-QAP: Australia QMP-LS: Canada LEECH: Spain NASCOLA: United States
QMP-LS Distributes an Announcement Regarding the Canadian PT-VWD Project
March 15 2008 QMP-LS (Quality Mangament Program - Labaoratory Service) distributes an announcement regarding a project to investigate the occurrence of platelet type von Willebrand Disease (PT-VWD) and differential identification from the closely similar, type 2B VWD to laboratories performing von Willebrand investigations in Ontario, Canada