Welcome to the new PT-VWD.org website.

Please take a moment to browse through the links in the left side bar to gain more insight about this condition. Several links to Canadian and International bodies for thrombosis and hemostasis can be found in the right side bar.

As always, please feel free to contact the site curator Dr. Maha Othman MD, PhD with any thoughts or suggestions.

Recent News

Combined PT-VWD with type 2B VWD Phenotype

Oct 6th 2016. The first report for combination of two mutations: one in the VWF gene causing type 2B VWD and another in the platelet GP1BA gene causing a PT-VWD...


ISTH Final Report on PT-VWD Registry and Worldwide Efforts Now Published in JTH

May 2106. An overview, progress and update on the research work and collaborative world wide efforts since 2007 is now published in the Journal of Thrombosis and...


ISTH Project to Support PT-VWD Diagnosis & Management

May 10th 2015. An invitation for physicians and specialists caring for PT-VWD patients to participate in an international survey to help generate an evidence-based...


A 6th novel mutation reported to cause PT-VWD

Jan 31st 2014. A new non- previously reported mutation within VWF binding region of GP1BA  gene is now reported in a patient diagnosed with PT-VWD in Argentina....


PT-VWD updates reported to ISTH 2012: SSC-VWF

July 27 2012 Click here for an update http://c.ymcdn.com/sites/www.isth.org/resource/resmgr/yearly_subcommittee_minutes/2012_minutes.pdf


PT-VWD updates reported to ISTH 2011: SSC-VWF

Aug 16 2011 Click here for an update http://www.isth.org/default/index.cfm/ssc1/2011-ssc-subcommittee-minutes/2011-von-willebrand-factor-minutes/


New to the site: PT-VWD Forum

April 8th 2011 Dear patients, clinicans, specialists, scientists and technologists with interest/ experience in PT-VWD:  a forum has just been created on the site to...


PT-VWD Project Full Results Now Published

Feb 9th 2011 PT-VWD project detailed results are now online:  Thrombosis and Hameostasis prepublished February 08, 2011 Frequency of Platelet type versus Type...