Welcome

 

Welcome to the new PT-VWD.org website.

Please take a moment to browse through the links in the left side bar to gain more insight about this condition. Several links to Canadian and International bodies for thrombosis and hemostasis can be found in the right side bar.

As always, please feel free to contact the site curator Dr. Maha Othman MD, PhD with any thoughts or suggestions.

Recent News

A 6th novel mutation reported to cause PT-VWD

Jan 31st 2014. A new non- previously reported mutation within VWF binding region of GP1BA  gene is now reported in a patient diagnosed with PT-VWD in Argentina....

 

PT-VWD updates reported to ISTH 2012: SSC-VWF

July 27 2012 Click here for an update http://c.ymcdn.com/sites/www.isth.org/resource/resmgr/yearly_subcommittee_minutes/2012_minutes.pdf

 

PT-VWD updates reported to ISTH 2011: SSC-VWF

Aug 16 2011 Click here for an update http://www.isth.org/default/index.cfm/ssc1/2011-ssc-subcommittee-minutes/2011-von-willebrand-factor-minutes/

 

New to the site: PT-VWD Forum

April 8th 2011 Dear patients, clinicans, specialists, scientists and technologists with interest/ experience in PT-VWD:  a forum has just been created on the site to...

 

PT-VWD Project Full Results Now Published

Feb 9th 2011 PT-VWD project detailed results are now online:  Thrombosis and Hameostasis prepublished February 08, 2011 Frequency of Platelet type versus Type...

 

Final Data from the PT-VWD Project at ISTH-SSC Cairo May 2010

June 10th 2010 The final results from a three years project searching for the rare bleeding disorder PT-VWD in addition to Updates on the PT-VWD registry  were...

 

PT-VWD Registry and Worldwide Survey to be Discussed at the ISTH SSC- VWF Meeting

July 10th 09 The PT-VWD registry and results from a worldwide survey will be discussed at the Von Willebrand Factor  SSC- bussiness session on Sunday July 12th...

 

Canadian PT-VWD project Update at ISTH July 2009

April 30th 2009 Progress and update from the Canadian PT-VWD project will be discussed in the von Willebrand Disease oral Session at  ISTH July 2009. http://www.isth2009.com Title:...